https://www.pffd.org/blog/1435 If you are new to PFFD - I recommend starting with the PFFD book en https://www.pffd.org/node/605 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>My son was born April 23, 2009, he was born with pffd on his left leg and on his right leg he’s missing his fibular bone. He also only has four toes on each foot. I had 5 ultra sounds during my pregnancy and nothing showed anything wrong with his legs. When he was born it was very hard to deal with but he was loved very much. I could not stop crying and I remember while holding him he gave me a smile as if to say everything was going to be ok.<br /> Although it has been hard, first finding a doctor, the first one didn't even know what Tristan had; he said he had to look it up. We did not go back. We finally found a hospital that only deals with limb differences and are finally getting answers to all our questions. Today Tristan is a very happy baby! He was crawling at four months (commando style) and now that he's 51/2 months we had to Tristan proof the house.<br /> We plan on surgery in March to amputate part of his right foot. Because he's missing his fibula he has no outside ankle bone so his foot is very unstable.<br /> I also want to say I just found out about this web sight through Mary Free Bed and a book they gave me Imagine...Amazing Me! By Libbi Chilia. It showed me that we are not alone. Thank you for an amazing book, Every time I look at it I can't get over how the kids look happy. I know that there’s going to be more hard times ahead but for right now I look in those big blue eyes and thank God every day we have Tristan.</p> <p> Frances<br /> 10/12/09</p> </div></div></div> Mon, 12 Oct 2009 11:58:53 +0000 f.barnes 605 at https://www.pffd.org https://www.pffd.org/node/605#comments