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 <title>Simon Kinuthia&#039;s blog</title>
 <link>https://www.pffd.org/blog/1483</link>
 <description>If you are new to PFFD - I recommend starting with the PFFD book</description>
 <language>en</language>
<item>
 <title>Cost of super hip operation and each lengthening operation</title>
 <link>https://www.pffd.org/node/678</link>
 <description>&lt;div class=&quot;field field-name-body field-type-text-with-summary field-label-hidden&quot;&gt;&lt;div class=&quot;field-items&quot;&gt;&lt;div class=&quot;field-item even&quot;&gt;&lt;p&gt;Hi, as I wait for an estimate from Dr Paley&#039;s hospital, I would like to get a feel of the cost of super hip operation and lenghthening, and also duration between the super hip operation and lengthening. Are there extra charges/taxes for patients from outside US? Am from Nairobi - Kenya... Please Help&lt;/p&gt;
&lt;p&gt;Simon&lt;/p&gt;
&lt;/div&gt;&lt;/div&gt;&lt;/div&gt;</description>
 <pubDate>Wed, 01 Sep 2010 06:57:14 +0000</pubDate>
 <dc:creator>Simon Kinuthia</dc:creator>
 <guid isPermaLink="false">678 at https://www.pffd.org</guid>
 <comments>https://www.pffd.org/node/678#comments</comments>
</item>
<item>
 <title>How early can lengthening start?</title>
 <link>https://www.pffd.org/node/665</link>
 <description>&lt;div class=&quot;field field-name-body field-type-text-with-summary field-label-hidden&quot;&gt;&lt;div class=&quot;field-items&quot;&gt;&lt;div class=&quot;field-item even&quot;&gt;&lt;p&gt;Hi, My daughter Ayanna has unilateral PFFD. She is now 1yr 3 months, I was wondering how early lenghtening procedures can start? The doctors I have met have told me that they will advice me in due course!! I need to know to plan!! Please help&lt;/p&gt;
&lt;p&gt;Simon&lt;/p&gt;
&lt;/div&gt;&lt;/div&gt;&lt;/div&gt;</description>
 <pubDate>Wed, 23 Jun 2010 13:45:56 +0000</pubDate>
 <dc:creator>Simon Kinuthia</dc:creator>
 <guid isPermaLink="false">665 at https://www.pffd.org</guid>
 <comments>https://www.pffd.org/node/665#comments</comments>
</item>
<item>
 <title>people affected by pffd in nairobi - kenya</title>
 <link>https://www.pffd.org/node/653</link>
 <description>&lt;div class=&quot;field field-name-body field-type-text-with-summary field-label-hidden&quot;&gt;&lt;div class=&quot;field-items&quot;&gt;&lt;div class=&quot;field-item even&quot;&gt;&lt;p&gt;Hi,  am looking for people with pffd or those affected by it by being parents or friends/family of people with pfffd in nairobi, so that we can network and work together. Kindly get in touch with me, my email is &lt;a href=&quot;mailto:skinuthia2001@yahoo.com&quot;&gt;skinuthia2001@yahoo.com&lt;/a&gt;&lt;/p&gt;
&lt;p&gt;regards&lt;/p&gt;
&lt;p&gt;simon&lt;/p&gt;
&lt;/div&gt;&lt;/div&gt;&lt;/div&gt;</description>
 <pubDate>Wed, 05 May 2010 07:34:58 +0000</pubDate>
 <dc:creator>Simon Kinuthia</dc:creator>
 <guid isPermaLink="false">653 at https://www.pffd.org</guid>
 <comments>https://www.pffd.org/node/653#comments</comments>
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