https://www.pffd.org/blog/1677 If you are new to PFFD - I recommend starting with the PFFD book en https://www.pffd.org/node/747 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>I'm 23 years old with PFFD of my left leg and right now I am experiencing some major issues with my prosthesis. I have had no surgeries, my mother thought it should be my decision and I don't want an amputation. I have been wearing a full length prosthesis, which doesn't bend as my " little leg" sits inside it. I've been getting on well my whole life with the legs, people don't even realise that I have an artificial leg ,they think I just have something wrong with my hip. I can get up and down stairs the normal way. I even walk on my little leg to get around the house to do chors etc, much like an infant would. Anyway, long story short, the leg whcih lasted me a good ten years is done. I can't wear it anymore. Now, here's the real killer. Every new leg that I get made is ill fitting, causes constriction, my foot burns and itches at the same time. I seriously can't walk in them. </p> <p>I have had to defer my 3rd year of University and right now I have been on crutches for two months as I have no leg to walk in. The people who make the legs are not taking any responsibility what so ever. Oh, did I mention it's been two years of my life that this has been going on for! Not only have they left me to suffer physically but also they've left me psychologically distraught. I have depression now and I guess you could say my life sucks. I'm writing this because I'm hoping it will help. I honestly don't know why the prosthetists' can't make me a comfortable new leg. </p> <p>I recently saw an Orthopaedic Consultant who mentioned limb lengthening. Since then I have done my research and really want it done. I saw this surgeon again the other day and his attitude was terrible. He said my femur was very short, the muscles are short.... it would be difficult etc. He offered amputation. It's funny I've been offered amputation in the past but in the 20 years of medical advances what I am still getting offered? Amputation! I was so angry and upset that I burst into tears and couldn't articulate a sentence after that. He didn't like it when I mentioned Dr Paley. Probably becasue he is the expert and this guy I was seeing isn't! He said he would need to look at my scans again and talk to others about it. One of them being Dr Paley I hope. That's the impression I got anyway. I don't know what class I am but I really hope Dr Paley can help me. I won't see this guy until next month. That's a long time to wait...</p> </div></div></div> Sun, 08 May 2011 18:48:01 +0000 YvoDivoDiNozzo 747 at https://www.pffd.org https://www.pffd.org/node/747#comments