https://www.pffd.org/blog/24 If you are new to PFFD - I recommend starting with the PFFD book en https://www.pffd.org/node/104 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>We were blessed with our third child April 23,2004. He has been diagnosed with PFFD. His right leg is predicted to be 23cm shorter. We saw Dr. Standard in Baltimore when Bryant was 5 weeks old. Dr. Standard is in with Dr. Paley. We are planning to do leg lengthening. He will have his first surgery this fall when he is 18 months old. They will work on his hip, femur, knee, and ankle (I guess kind of reconstructive type surgery). We will not do lengthening at this time. I was wondering what to expect with this surgery. How should we plan on caring for him? Also, 23cm is a lot to lengthen. Has anyone gone through this much lengthening? I know we have a long road ahead of us. One more question- How do I help Bryant walk until his first surgery? Did anyone have to use a brace until the leg is lengthened? I appreciate your help and advice.</p> </div></div></div> Tue, 08 Mar 2005 22:18:13 +0000 bryant 104 at https://www.pffd.org https://www.pffd.org/node/104#comments