waylonsmom's blog

Waylon is walking!!!!

waylonsmom — Tue, 04 Mar 2008 03:21:01 +0000

I have checked into this site hundreds of times over the past year and a half. I have read many stories and made contact with many people and was helped along this journey with PFFD. I always imagined how it would feel to announce that my baby was finally able to walk, well, it is true, MY BABY IS WALKING!! Waylon had a Symes amputation in July and was fitted with an AK prosthesis in October. He has been taking stumbling steps between me and his dad for about a month but this weekend he just got the hang of it. He is now able to walk on his own. Our entire family is so proud of him and I am so relieved to be at this point, finally!!! I remember many very hard days where I did not know what we were going to decide to do and days where I was so scared of the decisions I had made. I would cross the spot in his babybook that said "first steps" and I would dream of the day I could fill this spot in. Right after my son was born and I had posted my story on this site, someone wrote to me and said "it will get easier" It is so true!! I just wanted to announce my great news and say thank you to all of the wonderful supportive people out there, and thank God for this site!! Thanks, Kathy

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three pffd babies meet

waylonsmom — Thu, 07 Dec 2006 03:31:33 +0000

My three and a half month old son waylon had an appointment at Shriners in Sacramento today. I met Kalyn's mom Heather on this web site who also goes to Shriners in Sacramento, so we decided to meet there today. We introduced Kalyn and Waylon and we were introduced to a little girl named Galilia who is 19 months, has pffd and is walking with the aid of a prosthesis. It was so comforting to see other moms and babies with similar issues. We were able to sit and share with each other our stories so far. I am so grateful for this web site. We joked that Kalyn and Waylon would be boyfriend and girlfriend when they grow up, aren't they cute!!

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two month old baby boy

waylonsmom — Wed, 25 Oct 2006 07:38:43 +0000

I gave birth to a 7.5 lb. baby boy on 8-22-06. We had made it to each of our prenatal appointments and we did not suspect any thing was wrong. I had five ultrasounds to determine the location of the placenta, determine due date etc. Our doctors never found the abnormality. When our baby arrived we were shocked that there was something wrong. Our doctor had no idea what the condition could be and thats what he told us. So Josh and I sat for the next five hours with our first child, confused and scared. At 11:00 that night our doctor called us on the phone in our hospital room to report his findings via the internet. He said he thought it was Pffd, he mentioned amputation as a course of treatment. We were partially relived to have a name for our son's condition but also terrified of what our baby would have to go through. We have gone to Shriner's Hospital in Sacramento to see Dr. Rabb. He explained the basics and possible treatment, then directed us to research the condition on the internet so that we could decide which course of action we felt most comfortable with. So here I am, my son is two months old, he has unilateral pffd and does not appear to have a hip joint. I love him so much and find my self forgetting about the condition most of the day, but then it hits me, We have a big journey ahead of us and I feel so helpless. I know there are others who have been through this and I need some guidence right now. --Kathy