Sami Update

Samismom — Wed, 13 Aug 2008 18:04:59 +0000

Sami is now 4 years old. She is as active as just about any other 4 year old girl out there. She has class-D pffd, affecting her left leg. She participates in gymnastics (she can do a cartwheel now...but loves the uneven parallel bars the best). She also LOVES to swim, which has to be really good for her, right?

Now she's at an age where she is more aware of people (mostly kids) being more aware. While playing on a playground, some kids were asking about her prosthesis. After about the 3rd kid to ask, Sami said "It's just my leg, would you just drop it?!" I love her spunk...but, I also worry how this is all going to affect her in the long run. It's always great to read about the older people and how they are doing. As parents, my husband and I just try to keep encouraging her and supporting her. She amazes us all the time and we really couldn't be more proud of her.

We still question the right prosthetic for her. It seems like there are pluses and minuses no matter what route we take. Not to mention the big decision: to amputate the foot or not? UGH! I mean, one of Sami's complaints is that she can't run as fast as the other kids and she can't ride a bike like the other kids. Her doctor says if sports are really important, then I should think about amputating the foot. But she's only 4...She may love playing an instrument or singing and not care about sports at all when she's older. So, for now, it stays on.

Anyway, all our children with pffd are so special and so strong. I hope I always feel more pain and frustration that my daughter ever will.

Libbi: Sami's mom and author of "Imagine...Amazing Me" which features several of our special kids from this site!!

Rotation Option

Samismom — Fri, 18 Feb 2005 18:39:08 +0000

Hi there! My daugter, Sami, has PFFD...or CFD, as I was told yesterday. I guess it's more "politically correct." Sami is 7 1/2 months old and a complete JOY!! We went to see Dr. Paley yesterday for the 1st time. It was the first time we even saw an x-ray of her. Very interesting. Dr. Paley diagnosed her as "type 3." He said he "could" lengthen, but painted a very bleak future. He was much more animated when he spoke of the rotation. As parents, you know...we want the BEST for Sami...we are going to teach her to be strong, proud, smart, confident...know she's beautiful...just as we would if she didn't have this...PFFD. She's a WHOLE person...as you & your kids are...not just a leg...so my question (I'll get off my soap box, I'm actually prepping myself for when I have to talk to friends/family!!)

Question...who has gone thru a rotation and what has it been like?

Thank you!!

Samismom's blog

Sami Update

Rotation Option