steph's blog

My e-mail friend Julia

steph — Wed, 27 Aug 2008 09:39:51 +0000

Hello everybody,

I want to share some more pictures of my e-mail friend Julia.

The pictures show that one can be a strong, confident and beautiful person in spit of having a handicap like PFFD

Regards, Steph.

Attachment	Size
julia5.jpg.jpg	48.68 KB
julia6.jpg.jpg	27.69 KB
julia7.jpg.jpg	21.53 KB
julia8.jpg.jpg	19.49 KB

My e-mail friend Julia

steph — Fri, 04 Jul 2008 12:19:13 +0000

I want to tell you about my E-mail friend Julia.

I am writing this short story to all parents that have emotional problems with the PFFD condition of their child. Dear parents, let your child grow up as it is born and let them decide for themselves what they want as treatment when they are grown ups.

Im am e-mailing to her for many years, She does not want to publish on this site herself but she allowed me me to tell her story.
Julia was born with PFFD on her left leg, aitken calass D so that her left knee is at hip height. Her thighbone is 2 inches long and her lower left leg and foot are "normally" formed.

Her righ leg is completely absent from the hip. She also misse two fingers of her right hand.
She is in her mid fourties. She had never surgeries on her left leg.
She can stand and "walk" on her left leg and uses underamrcrutches in the house than. The rest of the time she uses an electric wheelchair.

Julia is a very attractive woman who does not want to hide her handicap. She she does not consider herself as handicapped, just "differently abled". She is a very happy person, has a lovely husband and two children.

Herewith a few pictures of her.

Attachment	Size
7293.jpg	38.9 KB
7092.jpg	8.61 KB
4bd2.jpg	47.85 KB
7ff9.jpg	31.33 KB

Forgot

steph — Tue, 05 Dec 2006 11:29:26 +0000

I forgot to attach pictures of how I look nowdays.

Steph

Attachment	Size
Image3.jpg	38.98 KB
Image4.jpg	30 KB
Imagea31.jpg	81.73 KB
image5.jpg	49.2 KB
Image14.jpg	36.53 KB
Image16.jpg	56.52 KB
image40.jpg	124.87 KB
Image45.jpg	73.15 KB
Image35.jpg	68.65 KB
Image46.jpg	78.8 KB
Image48.jpg	101.8 KB
Imagae42.jpg	73.86 KB
image 49.jpg	95.62 KB
Imag49.jpg	72.61 KB
Image51.jpg	67.2 KB
image54.jpg	64.61 KB
Image55.jpg	53.89 KB
image54.jpg	64.61 KB
Image53.jpg	75.71 KB
image115.jpg	82.96 KB

Bilateral PFFD

steph — Tue, 05 Dec 2006 11:16:47 +0000

I am a 38 year old woman with bilateral pffd. Both are Aitken class D
My legs have about the same length.
When I was four my parents decided that I had to have rotation surgery on both legs so that I could wear prosthesis. After the operation my legs and feet stopped growing and my shoe size is still a 12, 5 childs zize.

Unfortunally I did never succeed in using the prosthesis becaue I have no hip loints.so I decided to walk on my natural feet. I have a very waddling gait but that is not a problem for me.
I can walk short distances in and around the house without support. Outside I walk with two short crutches or use a wheelchair.

Steph