https://www.pffd.org/blog/54 If you are new to PFFD - I recommend starting with the PFFD book en https://www.pffd.org/node/601 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>Hi there,</p> <p>I was wondering if anyone out there has a little girl or knows a little girl with Bilateral PFFD Class C/D who is in need of some trousers/pants. I have been sorting out all our baby things and came across a bag of tights and trousers all of which were shortened/adjusted for our daughter. The sizes range from 3 months to 2-3yrs. I'm happy to post them anywhere in the world they are needed so please do get in touch.</p> <p>Our daughter Jess is now 6 years old and (beams with pride) swam for the first time today without any armbands or support. For those of you at the beginning of your journey let me encourage you that all things are possible with God!<br /> Jo<br /> xxxx</p> </div></div></div> Tue, 22 Sep 2009 19:10:56 +0000 Dowdeswell 601 at https://www.pffd.org https://www.pffd.org/node/601#comments https://www.pffd.org/node/132 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>My husband James and I have a little girl called Jessica. She is 22months old and has Bilateral PFFD. She appears to have a rare type as she is missing several bones and the precise anatomy of her legs is currently unknown. She is missing the fibula but has feet but no ankle joint and is missing her little toes. She either has a tiny femur and tibias or a hip joint and femur. There is currently confusion about this.</p> <p>Despite all this she is very mobile and gets around on her hands and feet - bear style. Her latest trick is to lift her body weight on her hands and flip herself over onto her back-effectively doing somersaults. It scares me silly but she thinks it's hilarious!! Nothing stops her and she has a will of iron. Is this a common trate? :)</p> <p>We are now at the stage of making decisions about treatment options for her. At the moment our options are:<br /> * Fit prosthesis without surgery - but they will be bulky and more difficult to fit with her feet in the way.<br /> * To have symes amputation of the feet and fit prothesis. However we are unsure of the stability of her hips.</p> <p>Is there anyone else in he UK who has this condition and knows doctors who may be experienced? We have been seen by many doctors over the past two years and are now trying to find some consistancy with a team in Birmingham.<br /> Also, is there anyone who can advise us on amputation. When this was first discussed it was devistating and we still struggle with it. We are beginning to accept that this will be the way forward but when you are in the situation it's really hard but we're still smiling :)</p> <p>Hope to hear from some of you,<br /> Jo<br /> X</p> </div></div></div> Sun, 19 Jun 2005 18:20:17 +0000 Dowdeswell 132 at https://www.pffd.org https://www.pffd.org/node/132#comments