https://www.pffd.org/blog/799 If you are new to PFFD - I recommend starting with the PFFD book en https://www.pffd.org/node/413 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>My daughter is nine years old. She is an absolutely beautiful child who was born with PFFD. She is a uni and it affects her right leg. We recently (the beginning of April) went through her third surgery. She has had 2 hip surgery's and the most recent was the Van Nes Rotation Plasty. We were blessed to have one of the physicians who is tops in this particular surgery perform it. Dr Krajbich is an absolutely fabulous doc! We took a long time to really weigh out all the options from lengthening to amputation. We discussed in many conversations with our daughter as to if she had any opinions on the decision. We decided upon the rotation plasty after many long nights and lots of lost sleep. We felt that this would really give her the greatest mobility. I know that each child is different with a world of variables as well, but are there any parents or older girls/women who have also gone through all of the stuff that has any advice? We are begining to enter the pre-teen world soon and as a 'normal' girl it was hard enough. I would like to help her as much as possible w/out being too momish. I hope to avoid the boy/girl thing as long as possible but I know it will be here before I can blink:).</p> </div></div></div> Wed, 21 May 2008 18:33:32 +0000 bhopkins224 413 at https://www.pffd.org https://www.pffd.org/node/413#comments