Update

Podgirl — Thu, 16 Jul 2009 16:08:19 +0000

Hi,

I am Amy and have right PFFD. My last post was focused on being positive and I just wanted to update everyone. I have now moved away from home and live on my own. I can do everything an able bodied person can do so I am coping very well. I have made friends were I am and have a full active social life. I am currently working with people who suffer from mental health problems and I am really enjoying it. I am planning on doing my PhD sometime in the near future and hopefully ending up in research. For any parents who have any worries about their child growing up different, so long as you give them all the support they need, they will be just fine. Since moving (I am now near London, UK) I have been referred to a specialist clinic for people with PFFD. I have not had any input since my operations as a child so this is a huge development for me. I am more than willing to answer any questions anyone has.

Regards
Amy

Positivity.

Podgirl — Tue, 10 Jun 2008 20:45:38 +0000

Hi,

I am a 23 year old women who has unilateral pffd to the right side. I have undergone many operations as a child including knee fusion and a foot amputation. I live in England and have just graduated from university with a degree. I have a fantastic social life and great family support. Living with pffd can be very annoying at times but so long as you always remember there are people worse off, you can stay positive. I wanted to post something that may help some people realise that pffd is a condition that is lived with. It does not run my life (however sometimes it does stop me from doing some things), it is part of my life, and my way of thinking is that it makes me different and special. I am different and i'm proud of that. If your confidence is kept high then nothing and no one can bring you down.

Best wishes to you all

Amy

Podgirl's blog

Update

Positivity.