PFFD VSG2

Hi there, my daughter was born in 1994, with no left hip and short femur, Atkins D, now age 13yrs, She had her foot amputated in 1997, age 2 and had her knee removed and short femur and tibia fused to make one straight bone,in 2006, reading other peoples stories the knee option was never offered, to us earlier and l wish it had been,
We have had to do a lot of hospital changes to get the best standard of service and have a leg made where the foot does not come loose etc, Yasmin has never really spoke to any other children and adults with PFFD, she met one young girl and she couldn't deal with it, l think it is important for our children to speak and meet other children or adults like themselves,
l think because of the bulling yasmin has experienced since the age of 5yrs, she avoids thinking about her condition, she struggles to deal with it and she has cried, we both have, people are cruel and ignorant.
Now l have found this Website l will try and get my daughter, Yasmin to join. "who is an inspiration".
Michelle
Mother