PFFD VSG2

This site pffd.org

rar — Sun, 23 Mar 2025 02:14:58 +0000

PFFD:

I turned 93 yesterday

pibit — Wed, 24 Jan 2024 20:32:51 +0000

ON the 23rd of January I turned 93. Hard to believe with all I've been through, but here I am-still alert. still able to play chess, still drive, and with my power chairs I have a radius of 3 miles for activity or shopping. I have been diagnosed with stage one Lung cancer and am having breathing problems, so I am not sure how much longer I will be around-that is up to Lord.

Update

pibit — Mon, 24 Jan 2022 15:02:37 +0000

I just celebrated my 91st birthday (yesterday 1/23/22). Thought I would let you know, I am still active, still driving despite being wheelchair bound the last 10 years and can still play chess and beat the youngsters. God bless you all.

Paul B Tomaino (pibit)

pibit — Sun, 24 Jan 2021 19:06:41 +0000

I celebrated my 90th birthday yesterday. Thought I would share this with other PFFDs. I am still quite active, live alone, able to drive and can still play a strong game of chess. The best advise I can give is always remember it's the ability NOT the disability that counts. Keep a close relationship with the Lord as He is always there to help and protect you.

Ella

Ella — Thu, 09 Jul 2020 10:43:24 +0000

I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself. I am keen to make contact with them, although they don’t seem to have been active since 2012, so any guidance in how to connect would be very appreciated. I am a member of the Facebook PFFD page so you can see my posts and photos on there.

Looking to meet other people with bilateral PFFD

Ella — Thu, 09 Jul 2020 10:42:53 +0000

PFFD:

General Discussion

89th birthday

pibit — Thu, 23 Jan 2020 22:40:40 +0000

I just turned 89 and am looking forward to my 90th.

PFFD:

General Discussion

History of PFFD

maryjane280 — Sun, 03 Mar 2019 20:44:13 +0000

Does anyone know when the first case of PFFD was discovered?

PFFD:

General Discussion

88th Birthday

pibit — Thu, 24 Jan 2019 19:23:18 +0000

I just celebrated my 88th birthday. I am still quite active. I am permanently wheelchair bound but as long as I can still drive and get around that is all that counts!!

PFFD:

General Discussion

Amputation

LibbiC — Fri, 02 Jun 2017 00:32:18 +0000

Hi, seeking advice. My daughter has PFFD. We chose not to amputate her foot, deciding that she could make that choice on her own. She is 13 now, and is considering it...I'm am wondering if anyone has experience with this and can give insight on what to expect in regard to recovery, phantom pain, mobility, etc. thank you!

PFFD:

General Discussion