PFFD VSG2

Hi Everyone,

I hope the offensive posts are removed....knowing it is likely spam and perhaps has a virus, I hope no one clicks on it.....Not sure how to requesst removal...if anyone knows, please request moderator to delete it asap. Thanks.

Since a prior post I have gotten more information. I am feeling so much better. Thank you to those who have assisted! Insurance covers all "in network" docs the same, so if we use an out of state one (Dr. Paley or Dr. Herzenberg, for example) the out of pocket is the same as if we continue with doctor at UNC. Dr. Paley has numerous videos posted on his site at www.limblengtheningdoc.org under the conditions page, and Sinai Hospital's site (Int'l limb lengthening center) has a lot of helpful patient tips about treatment etc. I have emailed both Dr. Herzenberg and Dr. Paley and have gotten prompt responses. Medical records and xrays are on their way to those experts.

Hi Nicholas is 5 /12 unilateral pffd. Was never told classification and only got estimate descrepancy form doctor at last visit when we pressed- 20 cm. Have been seeing unc hospital pediatric orthopeadics and had 2 hip surgeries: Osteotomy I believe. Have had many unanswered questions. Don't know where to start or how to get proper support to address choices, consequences of choices and what we need to consider psychologically for him as well as estimated logistics (if we go to Dr. Paley in FL, how long will we be there, what will it cost, does insurance cover all doctor costs similarly? Dr.

My son has outgrown a lot of pants, and I hate to "throw them out" I sewed the left leg so it is a few inches shorter. Nicholas has bilateral pffd, left leg. Does anyone have a young boy could use his "hand me downs"--pants. All are in excellent conditon, very gently worn. All the other clothing can go to family members and others but the pants! I'll be happy to send if they could have a new home.