Personal Stories Archive

Please Note: These pages are archived from the static PFFDVSG pages.
If you would like to add your story then please sign-up for an account. If you
are the person in the story below - sign up and you can maintain it yourself.

PFFD Individual Stories

(sorted by state)

Alabama

Name                    
 

Location

Birth Uni/Bi

Aitken Treatment                

                 

[[Rebeccah's Story]]

AL

1987 Uni Class ? Lengthening

California

Name                    

  Location Birth Uni/Bi Aitken Treatment [[Suzannette's Story]]

CA 1987 Uni Class ? Lengthening Uncommon
Valor
CA 1984 Uni Class ? Dr. Moseley's P.F.F. Device

Florida

Location Birth Uni/Bi Aitken Treatment
[[Jonathan's Story]]

FL

1994 Uni Class ? Lengthening
[[J's Story]] FL 1997 Uni Class ? Lengthening

Maryland

Name                    

  Location Birth Uni/Bi Aitken Treatment                

                  [[Inch-by-Inch: A Journey Down the Lengthening Road]] MD Uni Class ? Lengthening

Michigan

Name                    

  Location Birth Uni/Bi Aitken Treatment                

                  [[Jamie's Page|Jamie's Page]]

MI

1995 Uni Class ? Van Nes Rotation

Nebraska

Name                    

  Location Birth Uni/Bi Aitken Treatment                

                  [[Ben's Story|Ben's Story]]

NE

1989 Uni Class ? Lengthening

New York

Name                    

  Location Birth Uni/Bi Aitken Treatment                

                  [[Caleb's Story|Caleb's Story]]

NY

1997 Uni Class ? Symes/Knee fusion/AK prosthesis [[Marc's Story|Marc's Story]]

NY

1972 Uni Class C Symes/Knee fusion/AK prosthesis

North Carolina

Name                    

  Location Birth Uni/Bi Aitken Treatment [[Jesse's Story|Jesse's Story]]

NC

1995 Uni Class ? Lengthening

Ohio


 
Location Birth Uni/Bi Aitken Treatment
[[Jennifer's Story|Jennifer's Story]]

OH

1993 Uni Class C Symes/Knee fusion/AK prosthesis
Sarah's Story

OH

1998 Bi Class ? None

Oregon

Name                    

  Location Birth Uni/Bi Aitken Treatment Roxana's
Story

OR

1996 Uni Class ? Lengthening

Virginia

Name                    

  Location Birth Uni/Bi Aitken Treatment [[Danae's Story|Danae's Story]]

VA

1990 Uni Class ? Lengthening [[Trevor's Story|Trevor's Story]]

VA

1998 Uni ? Moseley P.F.F. Device


-->

Outside USA

Name                    

 

Location Birth Uni/Bi Aitken Treatment
[[Ella's Story|Ella's Story]]

England

1992 Bi Class D None
[[Holly's Story|Holly's Story]]

Canada

1987 Uni Class A Van Nes Rotation
Rebecca's Story

Canada

1977 Uni Class ? Lengthening
Katia's Story

Spain

1995 Uni Class ? Lengthening
Ovidiu Toma

Romania

1993 Uni Class B Extension prosthesis
[[Neville's Story|Neville's Story]]

South Africa

1987 Uni Hip Fusion/Prosthesis
[[Hello From Ireland]]

Ireland

1971 Bi Class ? ?
[[Cherie's Story|Cherie's Story]]

?

1972 Bi Class ? None
Caroline's
Story
Australia ? Uni

?

Dr. Moseley's P.F.F. Device
Michael's Story England 1998 Uni ? Lengthening
[[Dad's Story|Dad's Story]] Australia 1921 Uni Extension Prosthesis
[[Milena's Story|Milena's Story]] ? 1991 Uni ? Shoe Lift

Unknown Location

Name Location Birth Uni/Bi Aitken Treatment
Marilyn's
Story
Not a PFFD, but many of the same problems and concerns.
Andrew's Plight ?

1999

Uni ? Dr. Moseley's P.F.F. Device

The PFFD old guestbook archives are here: Guest Book Archives

Comments

kyle twin b. pffd with no hip joints

Kyle is almost 4, and only 30 inches tall and 24 lbs. Kyle also has pieere robin syndrome, g-tube, and tracg tube. Kyle basically han no thign bones or hip joints,but he walks and roller blades. We were told he can not have any lengthening done because thereis no thigh bone to work with. Does anyone have a similar story?

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