Please Note: These pages are archived from the static PFFDVSG pages.
If you would like to add your story then please sign-up for an account. If you
are the person in the story below - sign up and you can maintain it yourself.
Alabama
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|
Name |
Location |
Birth | Uni/Bi | Aitken |
Treatment
|
| Rebeccah's Story |
AL |
1987 | Uni | Class ? | Lengthening |
California
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken | Treatment |
| Suzannette's Story | CA | 1987 | Uni | Class ? | Lengthening |
|
Uncommon Valor |
CA | 1984 | Uni | Class ? | Dr. Moseley's P.F.F. Device |
Florida
|
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| Location | Birth | Uni/Bi | Aitken | Treatment | |
| Jonathan's Story |
FL |
1994 | Uni | Class ? | Lengthening |
| J's Story | FL | 1997 | Uni | Class ? | Lengthening |
Maryland
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken |
Treatment
|
| Inch-by-Inch: A Journey Down the Lengthening Road | MD | Uni | Class ? | Lengthening | |
Michigan
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken |
Treatment
|
| Jamie's Page |
MI |
1995 | Uni | Class ? | Van Nes Rotation |
Nebraska
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|
Name
|
Location | Birth | Uni/Bi | Aitken |
Treatment
|
| Ben's Story |
NE |
1989 | Uni | Class ? | Lengthening |
New York
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken |
Treatment
|
| Caleb's Story |
NY |
1997 | Uni | Class ? | Symes/Knee fusion/AK prosthesis |
| Marc's Story |
NY |
1972 | Uni | Class C | Symes/Knee fusion/AK prosthesis |
North Carolina
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken | Treatment |
| Jesse's Story |
NC |
1995 | Uni | Class ? | Lengthening |
Ohio
|
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|
|
Location | Birth | Uni/Bi | Aitken | Treatment |
| Jennifer's Story |
OH |
1993 | Uni | Class C | Symes/Knee fusion/AK prosthesis |
| Sarah's Story |
OH |
1998 | Bi | Class ? | None |
Oregon
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken | Treatment |
|
Roxana's Story |
OR |
1996 | Uni | Class ? | Lengthening |
Virginia
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken | Treatment |
| Danae's Story |
VA |
1990 | Uni | Class ? | Lengthening |
| Trevor's Story |
VA |
1998 | Uni | ? | Moseley P.F.F. Device |
Outside USA
|
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|
Name
|
Location | Birth | Uni/Bi | Aitken | Treatment |
| Ella's Story |
England |
1992 | Bi | Class D | None |
| Holly's Story |
Canada |
1987 | Uni | Class A | Van Nes Rotation |
| Rebecca's Story |
Canada |
1977 | Uni | Class ? | Lengthening |
| Katia's Story |
Spain |
1995 | Uni | Class ? | Lengthening |
| Ovidiu Toma |
Romania |
1993 | Uni | Class B | Extension prosthesis |
| Neville's Story |
South Africa |
1987 | Uni | Hip Fusion/Prosthesis | |
| Hello From Ireland |
Ireland |
1971 | Bi | Class ? | ? |
| Cherie's Story |
? |
1972 | Bi | Class ? | None |
|
Caroline's Story |
Australia | ? | Uni |
? |
Dr. Moseley's P.F.F. Device |
| Michael's Story | England | 1998 | Uni | ? | Lengthening |
| Dad's Story | Australia | 1921 | Uni | Extension Prosthesis | |
| Milena's Story | ? | 1991 | Uni | ? | Shoe Lift |
Unknown Location
|
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
|
Marilyn's Story |
Not a PFFD, but many of the same problems and concerns. | ||||
| Andrew's Plight | ? |
1999 |
Uni | ? | Dr. Moseley's P.F.F. Device |
The PFFD old guestbook archives are here: Guest Book Archives
Comments
kyle twin b. pffd with no hip joints
Kyle is almost 4, and only 30 inches tall and 24 lbs. Kyle also has pieere robin syndrome, g-tube, and tracg tube. Kyle basically han no thign bones or hip joints,but he walks and roller blades. We were told he can not have any lengthening done because thereis no thigh bone to work with. Does anyone have a similar story?