Our unborn boy has been found to have no right femur at all. His left is in the bottom 3rd percentile of length but goes from hip to knee. The bottom half of both legs and feet measure normally and scan normally. The forearm ulnas are in the bottom 3rd and 10th percentile as well but look to developing properly in relation to what they join on to.
I am deeply concerned that along with the physical disabilities that my son will have he may also have a cognitive problem.
So far no-one on this site ( that I can find) has reported any mental cognitive problems with their PFFD, that's a good sign, but can anyone relate a story where PFFD and slow cognitive development have presented?
Also, I am interested in finding out if anyone who has had a child with D class PFFD has then gone on to have any other children, as everyone's stories here seem to be about their "youngest". Does the daily lifestyle of a class D PFFD curtail the energy, money and desire to have another child?