I decided to write down a question message because of my dilemma a treatment of PFFD.
We live in United Kingdom and have little boy. Eric was born in August 2011 with PFFD.
English doctors in Sheffield think Syme amputating or Van Nes Rotationplasty would be the way to
do. Which we were told this before so it wasn't a shock.
We've send a email to Dr Dror Paley in Florida and he said, that the best option will be Paley-Brown Rotationplasty but unfortunately for us, this option is too expensive. So question I have of parents who went with Rotationplasty what's the difference between Van Nes and Paley-Brown Ratationplasty.
Anyone who has Van Nes done in England? I would like to know what's functionality (at every time) of people with
amputation of the food and Ratationplasty. So much to think about just wanted to hear a little from parents who have already done it..
Sorry it's so long!