Nour, my daughter is now 4 years and two months old. she is walking fine but a very visible limb. the doctors say since she is walking to leave her alone right now and wait for another six months and then get an x-ray and see how things go from there. I wish I knew some one here in Ga that could share their story with me. some times i feel alone because I do not personally know anyone that has a kid like me or has gone through this.
Comments
hello
Just wanted to let you know that I have a little girl who is three and has class d PFFD she had surgery at 15 months and has a prosthesis since the age of 18 months. It is hard not having anyone to talk to. We live in an area where there are no other children like her. The doctors were not even sure what was wrong with her when they discovered it at 34 weeks ultrasound. Between talking to others here on the website and visiting with Shriner's Hospital we have become acquainted with her condition and all the options. We would not change our decision for anything. I would be more than happy to answer any questions you might have. Hope all is well and have a Merry Christmas