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Hello all,

Im glad I have found this site. Im a 30 year old male with PFFD on the Right side. I have noticed alot of the stories on here that sound like mine. The doctors telling my parents I would not be able to walk or even do much of anything. I was offered the surgery through Shriners in Houston but always denied it simply because I was able to do everything that I wanted to in my current condition. My left leg is about 12 inches or so shorter than my right side. I do experience pains in my back and left hip and knee areas. However, I guess this is just par for the course. I was raised as a normal kid and that I could do anything I wanted to do. I just had to do it differently. Like many of you I'm sure it has been difficult at times trying to figure things out, but I still would not change a thing. I have always enjoyed playing sports of various types. I have always been active and played sports all of my life I like to stay as active as I can. have an open prosthetic that uses a carbon fiber foot made for amputees (FLEX FOOT) I love it and it has held up very well. It is the second time I have had this type of set up. Before this one I always hated my prosthetic. They were always heavy and bulky. I find that PFFD as difficult as it can be has helped me in more ways than it has inhibited me. My PFFD has always been a driving force in my life and has always pushed me to do more, sometime more than I probably should. However, when others say "you can't or even shouldn't do that" it does nothing but aggravate me. I would love to talk with anyone who has questions or concerns.


Hi, I've been browsing this site for the last couple of days and have found a lot of people that have children with PFFD and not many that actually have a similar case to mine. I love your attitude to life as it's quite similar to mine, I've never been told I can't do something just because of my disability and just get on with things. I personally feel this is one of the best outlooks to have on life, make the most of what you've been given. It would be nice to talk sometime, Hannah :)