A must-read for anyone trying to make a decision:
It doesn't really show more options than just lengthening or amputation. But I suppose in order to feature all the choices and to throw everything into the mix, the article would have taken up too much space.
As for me and Adam, we certainly have no regrets. We never achieved "perfect". But we achieved happy, and that's a whole lot more than most people in this world do.
I am a 25 year old woman with PFFD and I couldn't be happier. Despite what scoiety calls a handicap, I have lived a normal existance so far. I am so inspired by the stories posted on this site, I was excited about sharing mine. So, here goes:
I was born the oldest of what would become a sibship of two. My sister, Kelly, was born 18 months after I entered this world. While my sister is "normal" and I am not, we were raised to know that we are both the just the same. I believe with all of my heart that children are a product of their environment and I contribute my acceptance and life successes to my very supportive, naturally talented mother and father.
Are there any people out there who have had a lengthing and are now adults (25+ yrs)? How have things gone?
Our daughter was born 5 months ago with PFFD in one leg (unilateral PFFD) as a class C or D Aitkens.
We had known ahead of time that she would be born with PFFD becuase we had discovered it during a routine ultrasound. The doctor who made the announcement was very discouraging, but that night we discovered the PFFD VSG as setup by Mike Malloy. It was more wonderful than words can describe. The stories there were uplifting, the people we contacted were very encouraging, and the information better than anything else we found. When our daughter was born we welcomed her into our lives fully with love, joy, and our hearts at ease.
FAQ (Frequently Asked Questions) for PFFD