PFFD VSG2

Hey everyone, just wanted to update on my visit with Dr. Paley. In case anyone hasn't read my story here's a little summary. I'm 22, have PFFD of one leg and have never had any surgeries whatsoever. I have wore a long prosthetic my entire life. My length difference (more than I thought it was when I first started writing on here) is 10 inches. I did a little research a couple of months ago on treatment and options when I discovered Dr. Paley for the first time. Most of you have probably heard of him but he does lengthening AND the hip and knee corrections that come along with having PFFD.

has anyone undergone iskd nail lengthening? or has anyone any info on subject

It's been a while since i've actually taken time to post something, but life's been hectic as i'm sure most parents with PFFD babies know by now. Olivia's surgery will be taking place between April and June 2010. I just can't believe that the closer the time comes to surgery the more unprepared i'm feeling. I'm reading as much as i possibly can, but still i feel like i'm not really finding someone who can tell me what to expect when my baby girl comes home from the hospital.

So my problem is I have a 4 year old that is not potty trained because she does not want to undo her belt. She goes tomorrow to get a new leg without a belt. When she does not have her current leg on she will go to the bathroom occassionally. I have tried several things to get her to go such as time out(cause she knows when she has to go she just refuses) and taking toys. Can anyone offer me some help. I am desperate.

On August 6, 2009 Justin had his Super hip/knee surgery.
It went longer than we or the Dr. Expected as there was more that need to be done. Justin is recovering. He still says this is the way to go!!!

Reading through some threads recently, I notice that several of us started out with 4 toes on our PFFD leg(s). When I was in kindergarten we all took off our shoes and counted our fingers and toes. The oject of the excersize of course was to get to 20, but I was the only kid that came up with 19. It absolutely blew my teachers mind, and turned me into a bit of a superstar at recess. Has anyone else had a similar, or amusing experience like this?

- Nick

Hi everyone. I know that there have been posts before regarding bikes. Sami is 5 and would love to get a bike. Does anybody have any pictures of their adapted bikes or advice on what you've tried? Sami is Unilateral affecting her left side. She's been able to ride her tricycle by using only her long leg.

Thanks!

The last one was so well received that we are doing another Limb Length Discrepancy chat.

What: Dr. Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening is hosting an online chat. Date : Thursday July 30
Time: 9 PM EDT
Place: http://www.chatzy.com/600868137410
Temporary password: lldtest
Day of chat password must be requested by email
You must also register with Chatzy in order to verify your email address.

This is for parents of children with various types of limb length discrepancies, not just PFFD/CFD.

Hi! I posted the blog a month ago "Summary of my story." I just wanted to update everyone on what's going on with me. Since doing my research a month ago & joining this site I have decided to make an appointment with Dr. Paley to see about leg lengthening. I haven't had any prior surgeries, I just wear a prosthetic now and I get along well, but since hearing about Dr. Paley I wanted to see if lengthening was an option for me. I have made my appointment for August 7th. I will update after my appointment once I know more about my options.

God Bless
-Julie

Hi,