Hello, My name is Kelly and I was born with bilateral pffd in 1978, my parents were told that I would never walk and be confined to a wheelchair.
I walked when was 3 yrs old much to the drs amazement! I havn't had any surgery as my pffd is severe and it has slowly deteriated with age.. I'm now 33 yrs old, still mobile and have a gorgeous 4 yr old son!!! My pregnancy was a perfect and it caused no problems with my disability.
My main issue now is as my condition is getting worse I have pains in my hips and knee and my mobility is getting very limited, although that doesn't stop me and I work as a nursery nurse, which I have been doing for over 12 yrs now.
I'm on the waiting list for an arthroscopy on my left knee...
Would love to hear from anyone with a similar condition as Ive heard its very rare... I was born in Jersey in the Channel Islands but now live in the UK xxx