Hi everyone. I created this site when my daughter was born, and it was great to contact lots of people and learn about PFFD. Unfortunately once we became popular, we were inundated with spammers using fake accounts. So with a heavy heart, I'm archiving this site. The content from before will be here, but the forums and logins will be disabled.
ON the 23rd of January I turned 93. Hard to believe with all I've been through, but here I am-still alert. still able to play chess, still drive, and with my power chairs I have a radius of 3 miles for activity or shopping. I have been diagnosed with stage one Lung cancer and am having breathing problems, so I am not sure how much longer I will be around-that is up to Lord.
I just celebrated my 91st birthday (yesterday 1/23/22). Thought I would let you know, I am still active, still driving despite being wheelchair bound the last 10 years and can still play chess and beat the youngsters. God bless you all.
I celebrated my 90th birthday yesterday. Thought I would share this with other PFFDs. I am still quite active, live alone, able to drive and can still play a strong game of chess. The best advise I can give is always remember it's the ability NOT the disability that counts. Keep a close relationship with the Lord as He is always there to help and protect you.
I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself.
I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself.
I just celebrated my 88th birthday. I am still quite active. I am permanently wheelchair bound but as long as I can still drive and get around that is all that counts!!
Hi, seeking advice. My daughter has PFFD. We chose not to amputate her foot, deciding that she could make that choice on her own. She is 13 now, and is considering it...I'm am wondering if anyone has experience with this and can give insight on what to expect in regard to recovery, phantom pain, mobility, etc. thank you!
